Monday, February 24, 2014

Using the Blog Again...

It's been a really long time since I've used this blog!  I used to write in it so often.  Then during Emma's bone marrow transplant, her FB page was much faster/easier to update.  So, I moved mostly over there to do so.

But, now that we are home, and now that I have four other kids I want to keep a blackmail journal on, I realize how much I miss this blog!  I feel like on the FB page I'm intruding on other people's lives a little bit too much by posting as much day-to-day that I want to be posting.  I feel a lot more comfortable doing that here on the blog, and more importantly, I'll actually start updating as much as I want to.


So, I'll be writing on the blog again...is what I'm really saying.


If you've missed our transplant journey, here's a little list of links to update you on some of the highlights along our journey.  We are back home now.  Emma is doing well.  We are relieved and very happy!


I'll be back soon to start our updates!


(If you're not used to Facebook, the updates are in the descriptions under the photos.  So, you click to "see more", and it'll show the whole update for that day.)


TIMELINE OF OUR JOURNEY

The day we left for transplant (June 6, 2013):
http://tinyurl.com/thedayweleft

(VIDEO) When daddy came to visit after six weeks:
http://tinyurl.com/whendaddyvisited

(VIDEO) When she saw Rhys:
http://tinyurl.com/whenrhysvisited

Heading in for Transplant (July 24th):
http://tinyurl.com/startingtransplant

(VIDEO)Her Actual Transplant (when they gave her new cells) - Aug 3:
http://tinyurl.com/gettingcells

Starting Chemo:
http://tinyurl.com/startingchemo

Mucositis:
http://tinyurl.com/mucositis

Shaving Heads:
http://tinyurl.com/shavingheads
http://tinyurl.com/shavingheads2

Going Outside Again:
http://tinyurl.com/outsideagain

Finally Discharged!
http://tinyurl.com/dischargedfromhospital

Family Leaving After a Visit:
http://tinyurl.com/leavingaftervisit

Readmitted for Fluid in Her Lungs:
http://tinyurl.com/readmittedforfluid

Discharged finally:
http://tinyurl.com/dischargedagain

Our Other Kids:
http://tinyurl.com/kidsdecisions

She developed EBV-Lymphoma:
http://tinyurl.com/PTLDcancer

Spending time with other kids:
http://tinyurl.com/kidsvisit

Her Bone Marrow Came Back to Assist:
http://tinyurl.com/bonemarrowrescue

Going to NY for Cancer Treatment:
http://tinyurl.com/goingtoNY

Explanation of T-Cell EBV-Cancer Therapy:
http://tinyurl.com/tcelltherapy

Diagnosis of Brain Bleed:
http://tinyurl.com/brainbleed

Meeting a NY Marathon Runner:
http://tinyurl.com/NYmarathonmedal

Back in Cincinnati Update:
http://tinyurl.com/incincinnati

Finally Discharged to Hotel:
http://tinyurl.com/lrq3za3
and
http://tinyurl.com/finallydischarged

We are told we get to go home:
http://tinyurl.com/allowedtogohome

Thanksgiving Away:
http://tinyurl.com/thanksgivingaway

Saying Goodbye:
http://tinyurl.com/goodbyecincygabby

At Home, Walking in the Front Door:
http://tinyurl.com/arrivedathome

First Day Home:
http://tinyurl.com/firstdayhomekidsdancing

What it feels like at home again:
http://tinyurl.com/whatitislikehome

Finally...EBV (lymphoma) is 100% gone:
http://tinyurl.com/EBVisgone

Dancing with Daddy Again:
http://tinyurl.com/dancingwithdaddyagain

Dating my Hubby again:
http://tinyurl.com/datingmyman