almost a date
Okay, I'm not doing as well as I thought I would do at posting all the stuff I post on FB onto here or vice versa...but I am getting all the important stuff posted on both!
It looks like the week of June 10th I will be leaving with Emma, Ella, and my sister Ani and will be going to Cincinnati to start the transplant process with Emma. It hasn't been confirmed on their end, but they were the ones that asked about that date, I said yes, and now I'm just waiting to hear "Okay, sounds good."
When we get there, she said we'll have about two weeks of testing, then another week of waiting for the results, and then they'll be able to start the transplant. Tyler can only take 2.5 weeks of paid time off, so we're trying to fit that in there at the best possible time, probably right around the time they actually start the transplant. It's really hard that he won't be able to come for more. He really wants to be there.
Anyway, I'll write more about that once I get it confirmed as there are lots of details to share.
Here are some recent photos...
We went on a walk Sunday. When I put on my sunglasses, Rhys grabbed some pink swimming goggles to wear as her sunglasses.
I like how it's obvious she can't really see at all, and one of them is totally foggy. I'm not sure she could see well enough to even know I was taking a photo...
It only got worse along the walk! Like how her left eye is all squished along with her ear? But she kept them on for a surprisingly long amount of time!
Then for quite a while, she rode around with them on the bottom half of her face.
It was the cause of much entertainment.
Then the next day she put on a her helmet to ride her....tricycle...and she put it on backwards.
Then Miss Emma has been really tired all day. She fell asleep on the couch for a little while, which never happens. I'm not sure if she just didn't sleep well or if her counts are lowering more and she'll be napping more often. She has blood work next week. Yes, yes, she has awesome pajamas, doesn't she? hehe.
Anyway, I'll write more later. Just wanted to update really quick! If you were interested in following up on our facebook page, too, you can here:
https://www.facebook.com/ourlittletasteofheaven
It looks like the week of June 10th I will be leaving with Emma, Ella, and my sister Ani and will be going to Cincinnati to start the transplant process with Emma. It hasn't been confirmed on their end, but they were the ones that asked about that date, I said yes, and now I'm just waiting to hear "Okay, sounds good."
When we get there, she said we'll have about two weeks of testing, then another week of waiting for the results, and then they'll be able to start the transplant. Tyler can only take 2.5 weeks of paid time off, so we're trying to fit that in there at the best possible time, probably right around the time they actually start the transplant. It's really hard that he won't be able to come for more. He really wants to be there.
Anyway, I'll write more about that once I get it confirmed as there are lots of details to share.
Here are some recent photos...
We went on a walk Sunday. When I put on my sunglasses, Rhys grabbed some pink swimming goggles to wear as her sunglasses.
I like how it's obvious she can't really see at all, and one of them is totally foggy. I'm not sure she could see well enough to even know I was taking a photo...
It only got worse along the walk! Like how her left eye is all squished along with her ear? But she kept them on for a surprisingly long amount of time!
Then for quite a while, she rode around with them on the bottom half of her face.
It was the cause of much entertainment.
Then the next day she put on a her helmet to ride her....tricycle...and she put it on backwards.
Then Miss Emma has been really tired all day. She fell asleep on the couch for a little while, which never happens. I'm not sure if she just didn't sleep well or if her counts are lowering more and she'll be napping more often. She has blood work next week. Yes, yes, she has awesome pajamas, doesn't she? hehe.
Anyway, I'll write more later. Just wanted to update really quick! If you were interested in following up on our facebook page, too, you can here:
https://www.facebook.com/ourlittletasteofheaven
Ok those pictures of Rhys are some of the funniest things I've ever seen.
ReplyDeleteI'm so excited to hear that you are getting a date nailed down, that has got to be a relief that you have a day to look toward. Thank you for keeping us all updated.